Cooley's Anemia Foundation: Rochester
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ARTICLES

Tired of Being Tired - 01/20/01
Article written by Lisa Cammilleri

It's January 20th, 2001 and the new year has begun! Time sure does go by fast. It just seems like I received my last transfusion a few days ago. When I left the hospital after receiving my transfusion I shouted to my nurse Dawn, "see ya next year!". That was neat to be able to say that, only my next transfusion in already here on Monday the 22nd of January 2001. Wow, talk about tired! My heart has been jumping around and I keep telling it that transfusion day is alsmost here and it better relax. I hate feeling so tired all the time. I just plain get sick of being sick. I know I'm not the only patient that feels this way. I do feel better after a transfusion, thank the lord for that! I get to feeling really depressed when I'm not tired, but my body is. I want to go out with friends, but have to cancel if I don't feel good. I see that chores around the house need to be done and can't get to them until I feel better. I would rather rest on the couch and wait until after a transfusion to take care of things. My doctor say's that I can get transfusions more frequently, but I would rather not get more iron than I already have, it's a catch 22 sometimes. I just got to keep thinking of all the good things in my life, which include my wonderful family and friends, my puppy dog Misty too. I have a job that's understanding of my illness, and I'm greatful for that also. We as patients have to keep going and not give up, there are a lot of people who love us and need us as much as we need them. So I just deal with being tired the best way I can, and know that it is temporary. I hope this article didn't put you to sleep(just joking). I just wanted to tell you how I feel sometimes and will post messages here and hope that you e-mail me with your article and let patients know they are not the only one's who have to deal with Thalassemia. Thanks for reading! Take Care.

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Missing My Father - 01/22/01
Article written by Lisa Cammilleri

I thought I would write down what I'm thinking right now. Next month it will be 8 years since my father passed away from Thalassemia. I miss him so much. He was so young and so sweet. No matter how much time passes, I miss him and think of him every day. As I live with Thalassemia I try and look at the bright side of things. I work and live a pretty normal life. Then there are times when I get so depressed thinking of all the people I have known that have passed away from this illness. I have been receiving letters from parents who have children that have just been diagnosed with Thalassemia and I feel so bad, knowing they have a lot ahead of them. My mother recalls my first transfusion, and it was hard on her. Doctor's have come along way and there are so many new therapy's out there. I thank god for that. I wish I could do more for people with this disorder. Even though I have these feelings, I wouldn't change anything in my life. I have a pretty good outlook on life when I don't dwell on the sad things. I try and remember the good things and the memories I have of my father and all the friends I had with this blood disorder. I want you all to know that I'm so glad I have you to lean on in times of sadness. I hope that I can be there for you when you need a helping hand. It helps me to know that I am not the only one going through transfusions, desferal, hepatits C, needles, hospitals and feeling down in the dumps from lack of red blood cells!!! I just thought I would let you know how I was feeling. =) Thanks for reading. If you are a patient and want to let people know how you are feeling, please let me know. Also, if you are a parent and would like to do the same, I am here to write whatever you feel. I think it helps others when they read something that they can relate to. So don't hesitate to write a little article for this website. Thanks for reading. Take Care!

Love, Lisa

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If you are a patient, family member, friend, doctor...etc and would like to post your thoughts or an article please email me.
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Webmaster: Shirley Cammilleri